EUPATI - European Patients' Academy
The European Patients’ Academy on Therapeutic Innovation (EUPATI) is a multi-stakeholder public-private partnership originally launched by the IMI-EUPATI project (2012-2017) and hosted by the European Patients’ Forum (EPF) from 2017 to 2020. EUPATI is today established as an independent Foundation in the Netherlands. It is a successful programme that provides education and training to increase the capacity and capability of patients and patient representatives to understand and meaningfully contribute to medicines research and development (R&D), and to improve the availability of medical information for patients and other stakeholders. It does so by conducting its established Patient Expert Training Course which has trained more than 150 patient experts (EUPATI Fellows), and with 60 more enrolled currently in the Course. In addition, EUPATI provides an open-access multilingual Toolbox that has served more than 4 million users around the world to date.
The Patients’ Academy was started, developed, and implemented as a flagship project of the Innovative Medicines Initiative, and continues to be led by the European Patients’ Forum. EUPATI has already trained over 150 patient experts on medicines development, clinical trials, medicines regulations, health technology assessment. Additionally, EUPATI offers and maintains the Toolbox on Medicine Development and coordinates a network of national platforms for patient advocates. EATG is a project partner and part of the Steering Group of EUPATI and participates in the further promotion and implementation of EUPATI training resources within its projects, membership, and networks in form of in-kind contribution.
EUPATI focuses on education and training to increase the capacity and capability of patients to be valuable contributors to medicines research and development by working with patients and the stakeholders they collaborate with, and also improve the availability of objective, reliable, independent, patient-friendly information for the public. EUPATI does not educate about disease-specific issues or therapies, but about the process of medicines development in general. Indication-specific information or specific medicine interventions are beyond the scope of European Patients’ Academy and are the remit of health professionals as well as patient organisations.
For what outcome?
EUPATI focuses on education and training to increase the capacity and capability of patients to be valuable contributors to medicines research and development by working with patients and the stakeholders they collaborate with.
EATG contact person(s):Fiona Greenhalgh – firstname.lastname@example.org
Duration of the project/initiative:Since 2012
Project/Initiative Leader:European Patients Forum (EPF)
Project/initiative Main Partner(s):EUPATI is a public-private partnership composed by a collaborative multi-stakeholder representing patient organisations, not-for-profit, pharmaceutical industry and academic institutions. The updated lost of partners is available on https://eupati.eu/about-us/contributors/
Budget:In-kind contribution (staff time: 5.000 € in 2020)
Main Funding Sources:Industry, public partners and EIT